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I may receive a commission if you purchase through links in this post. I am not a doctor; please consult your practitioner before changing your supplement or healthcare regimen. This is a personal post for me, not only because I had IC but because I know that this is an important article for many of you.
I know that some of you have been waiting for me to write this so that you might learn something and get well! The medical community considers IC an incurable bladder disease. The description of this disease from Web MD goes thus: Interstitial cystitis IC , often called painful bladder syndrome, is a tricky condition. Because IC has such a wide range of symptoms and severity, most experts think it might be several diseases.
If you have urinary pain that lasts for more than 6 weeks and is not caused by other conditions like infection or kidney stones, you may have IC. The disease can affect your social life, exercise, sleep, and even your ability to work. Despite this, you can still arm yourself with facts and treatments to keep symptoms in check. Some who have lived with IC symptoms manage them with a genuinely benign medication, meaning it works well and without side effects.
The catch is the cost. I literally had to fight back tears each month when I wrote a check to the pharmacist for the pills. I could never get over the criminal price. It is also affected by stress and last but not least, IC is affected by what we eat and drink. In addition to most of the allopathic community being corrupted by pharmaceutical companies, their other great weakness is a lack of knowledge or even interest in nutrition.
In our own community we are beginning to see cancer specialists who advocate for bone broth. Little by little doctors certainly will prescribe certain diets as alleviating to symptoms. But what you rarely see is a traditional, Western, medical doctor talking or caring about the fact that we can heal our bodies, and prevent disease, by the diet we choose. Another interesting fact about IC? And this is building toward the solution. For those of you who know what Leaky Gut is, do you know which percentage, of those who have Leaky Gut, are women?
So the incidences of leaky gut and IC coincide. Medical schools do not yet teach about Leaky Gut; so the correlation is not being made. But if you ask a naturopathic physician, they will not pause before saying … that yes, IC is an extension of leaky gut, all the way down into the bladder and the urethra.
Poor dietary choices, overuse of antibiotics and not being breastfed are the three most common causes, especially when they occur in conjunction with one another. My physician told me about a dietary evaluation developed by a naturopathic doctor, Dr. Carroll , about years ago. This is not a lab test. It is not like the food intolerance or allergy tests that most naturopaths use. Most naturopaths do not know about it. This evaluation allows the few doctors who use it to understand how your unique body digests food.
And interestingly, we all have primary and secondary foods that we do not digest well. Those who enjoy optimum health or who live in sunny climates detoxify better; and so their issues with these certain foods may never become poignant or important in their health journey.
But for those of us who live in less sunny climates and who struggle for wellness, this food digestion issue is huge. That means that there may be one food group in your diet that is literally sabotaging your health. If this is true, are you willing to pull out one whole food group to enjoy wellness? Even olives, olive oil, coconut, coconut oil, nutmeg, cloves, allspice… not to mention my favorites: When you eat a food you cannot digest it causes harmful heat and inflammation and damages your gut lining.
A damaged gut lining can lead to a leaky gut. A leaky gut lining can lead to food allergies. Food allergies mean your gut is reactive to certain foods.
A food intolerance is different than a food allergy. Food allergies can resolve in time after the gut lining heals. A food intolerance suggests that genetically you do not, and will not, make the machinery needed to digest a certain food. Find out the root of your digestive problems and learn what foods you simply cannot digest. My symptoms started, actually, in my urethra. Pain during sex, peeing, all the time, actually.
I met with the doctor. She prescribed an expensive medicine. She was very kind, and we also chatted about her work in general with IC patients. She said that she and the other leading IC specialist in the nation had actually performed hysterectomies and castrations in an effort to heal their patients!!!
She said she felt horrible about it now; but that they were on the forefront of the research being done and at the time, they felt it was their only next step. Can I open my mouth any bigger is shock and sadness?? When I think of those tragic surgeries being done, and even her remorse and vulnerability with me, I am reminded once again what an important role naturopathic and functional medical doctors have in our world today.
They look for the root cause. They do not treat symptoms. They try to heal without harming, with gentleness, with listening; and they have wisdom and knowledge that is more subtle, yet more powerful in most day to day cases, than the scalpel or pharmaceuticals.
The approach most medical schools teach and use is focused on managing symptoms, cutting out sick parts, and doing lots of clinical studies. But what about the wisdom from other cultures and time periods? What about learning from Eastern and other non-medical healthcare practitioners?
Pentosan Elmiron … is approved by the Food and Drug Administration specifically for treating interstitial cystitis. How it works is unknown, but it may restore the inner surface of the bladder, which protects the bladder wall from substances in urine that could irritate it.
It may take two to four months before you begin to feel pain relief and up to six months to experience a decrease in urinary frequency. Elmiron worked for me. The recommended dosage is to take 3 pills a day, or 3oo mg. The cost fluctuated at my pharmacy.
And if you miss a pill the symptoms come back, right away. But I have never been one to stay with an expensive medicine if I think I can get well without it, ooobviously. All of this happened after giving birth to our second child. After having our third child, in , I got sick in many other ways.
Something major needed to change. All of my kids had food intolerances or food allergies, depending on the definition of these terms that you choose ; and we were, to put it briefly, unwell. We started our diet of fatty broth and well cooked meat and veggies.
My IC got a lot better. I still had some onerous symptoms. I realized that we had zoomed through the first stages of the diet too quickly. So we all went back to the beginning. This is called the Introduction stage. Apart from it being a hard stage, it is the most healing time for the body. So when I went back to this stage, for the second time, my IC symptoms, which were already pretty good, disappeared completely. BUT it was the extremely gentle foods of the Intro.
Diet that took me all the way home. Diet… I was not eating fruit. So while, yes, that Intro. Diet allowed my leaky gut to heal more completely, thus eliminating any leakiness that remained in my bladder and urethra, removing fruit from my diet was the hidden power behind that healing.
How did I figure this out? By eliminating dairy, and with his wonderful use of homeopathy, he put her extreme asthma into remission. Upon removing fruit, the difference was amazing. I had no idea that it was fruit that made me feel so bad for so many years. One day, a few months ago, when I was living a fruit-free life, I was feeling SO well that I did what many humans do: So while I can never eat an apple without feeling awful, for example, I might be able to eat curry, that contains allspice.
I ate coconut oil for a few days and seemed to be fine. But then… I started jumping. I have a lovely rebounder , which I use for exercise and detoxification. You know what happened, right?
I peed in my pants! Yep, that felt worse emotionally than it did physically.
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